From just a couple staff members and a doctor with a vision, we have grown to be the largest PKD patient advocacy organization in the world. Located in Kansas City, we are run by a dedicated staff proud to be the voice for the millions of people impacted by polycystic kidney disease.
President and Chief Executive Officer
Andy Betts has been an executive for over 15 years, with extensive experience leading health and human service institutions, managing development, marketing, board relations and volunteer functions for non-profit organizations in the United States and Europe. Betts comes to the Foundation from The Salvation Army, where he was the Executive Director of Development for one of the largest divisions in the US, raising over $50 million annually. He has also held leadership roles for Outreach International in Kansas City, MO, and UCB broadcasting in England. Betts is accustomed to growing existing and new revenue stream while eliminating deficits at every organization he has led. As a volunteer, Andy served as Board Chair and fundraiser for Camp Quality U.K., a British national cancer charity, and volunteers for Autism Speaks.
Betts has a Bachelor of Arts in marketing and management from Coventry University, England, and post-graduate training in strategic management from Harvard Business School and the University of Indiana, Purdue University.
Chief operating officer
Carmen is an executive leader with over 15 years’ experience driving operational success. As a pioneering and practical self-starter recognized for delivering excellence, she has an extensive history in building and sustaining effective internal and external relationships. Prior to PKD Foundation, Carmen served as the COO for Girl Scouts where she was recognized for her strong business judgment and customer centric focus. She is passionate about developing high performing teams through coaching and mentorship in an environment that fosters diverse thought and robust problem solving. Carmen holds a bachelor’s degree from Central Missouri State University and a master’s degree in Human Resources Management from Keller Graduate School.
Chris Rusconi, Ph.D
Chief Research Officer
Chris is an executive leader with over 20 years of experience in the biotechnology world. Chris has a proven ability to actualize platform technologies across key segments and has a strong technical background with extensive global pharmaceutical development and regulatory experience. Before joining the PKD Foundation, Chris served as the Chief Scientific Officer of Vitrisa Therapeutics. Prior to joining Vitrisa, he co-founded and served as the SVP for Discovery / Preclinical Development and Chief Scientific Officer of Regado Biosciences. Before that, he was Director of Research for the Program in Combinatorial Therapeutics and Assistant Research Professor of Surgery at Duke University Medical Center. He received his B.S. with honors from the University of Kansas and earned his Ph.D. in molecular cell biology from the University of Colorado as an NSF Graduate Fellow in the laboratory of Nobel Laureate Dr. Thomas Cech. He completed his training as a Jane Coffin Childs post-doctoral fellow in the Surgery Department at Duke University Medical Center. In addition, Chris sat on the University of Kansas Biological Sciences Advisory Board and the RNA Society of North Carolina.
Chief Philanthropy Officer
Jon has been an executive leader for over 30 years with extensive experience leading relational sales and philanthropy organizations. Jon comes to the Foundation from ALSAC, the fundraising and awareness organization of St. Jude Children’s Research Hospital, where he led the Major and Principal Gifts program. During his nearly six year tenure he helped grow the division’s revenue from $26M to over $140M a year. Prior to St. Jude, Jon spent 17 years as the National Director of Gift Planning at Ducks Unlimited, Inc. Jon honed his sales and relational skills first as an intern than a financial representative with Northwestern Mutual/Baird, and was both a manager and financial advisor with NML/Baird for 18 years. Jon holds advanced degrees and certifications, including CAP Chartered Advisor in Philanthropy from the American College and FCEP Fellow in Charitable Estate Planning designation from the Charitable Estate Planning Institute.
Page last reviewed May 2022