NYC Community COE Event
Griffis Faculty ClubSusan R. Knafel Polycystic Kidney Disease Center Open House for Patients and Families
1:30 pm - 4:30 pm
7:00 pm - 8:00 pm
Diagnosed with PKD? You are not alone!
Are you a young adult diagnosed with ADPKD recently? You are not alone!
Join us for a peer-led conversation specifically for young adults navigating a new diagnosis of ADPKD. Share your experience, connect with others and learn about resources to support your PKD journey.
What to expect:
Introductions and shared experiences
A safe space for open conversation and support
Resource sharing and tips for self-advocacy
Q&A with professionals
Emily Chang, MD, Clinic Director at PKD Foundation Center of Excellence University of North Carolina Chapel Hill will join us for discussion and Q&A.
Navigating PKD is easier when you’re not doing it alone. Hope to see you on July 26.
Susan R. Knafel Polycystic Kidney Disease Center Open House for Patients and Families
Join us for our upcoming community meeting via video conference! Share your journey and hear from others within the PKD community who understand what you are experiencing. We'll share resources to help you manage living with PKD.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!
Research Update
In honor of National Family Caregivers Month, this webinar will recognize the dedication, challenges, and unique experiences of those providing care to loved ones with PKD, and offer practical, caregiver-centered information and resources to help caregivers feel supported and empowered.