Accelerating Clinical Trials (ACT) Alerts
One of the largest impediments to patient participation in research begins with awareness. We believed it was our goal to address this challenge and aim to increase awareness of PKD clinical studies among patients and families. The goal is to simplify the process of finding clinical studies for PKD patients in their geographic area by sending Accelerating Clinical Trials (ACT) Alert emails about studies that are being conducted.
In order to ensure that PKDF is promoting studies that address our mission to find treatments and a cure for PKD, only research approved by an ethics review board (IRB) and that meet one of the following categories will qualify for the program; there is no cost to utilize this resource.
- Clinical trials or activities supporting clinical trial development
- Observational studies of disease progression
- Quality of life burden research
- Clinical outcomes research
- Survey tool development or validation
Schedule an ACT Alert for your study
Email firstname.lastname@example.org for more information.
The ADPKD Registry is a collection of individuals with autosomal dominant polycystic kidney disease (ADPKD). By joining, ADPKD patients fill out questionnaires that help us identify their eligibility for clinical studies. PKDF can then provide these individuals with details on how to participate.