Community Reaction Panel 


Hello Community Reaction Panel!

Our last Community Reaction Panel meeting was on Aug. 29. We recorded this call where we provided PKDF updates and information about two upcoming opportunities for our Community Reaction Panel: Bridge Bio Partnership and our upcoming website project.  As we get into our website project, we will be reaching out to this group for your input and feedback.

If you were unable to join us in August, please take a few minutes to review the recording.

Bridge Bio is a biotech company putting together a focus group. Below, please review the Bridge Bio invitation! 


Community Reaction Panel

Bridge Bio Invitation

The PKD Foundation is partnering with BridgeBio, a biotech company focused on developing treatment options for rare diseases, to host a focus group for people living with ADPKD.  We would like to invite you to participate in this group discussion and guided conversation around the ADPKD diagnostic journey, daily challenges, current treatment and management strategies, and desired characteristics in future treatment options. Scientists from BridgeBio will also share information about their early program in ADPKD. 

The focus group will take place on Friday, Dec. 1 from 9 am to 2 pm central time at Chicago O’Hare Airport hotel and conference center. All travel, meals, and hotel expenses will be paid for by BridgeBio.  Additional meeting details to follow. 

Space is limited to 8 participants. Individuals living with different stages of ADPK are welcome. For additional information or to express your interest in participating, please email Amanda Rohrig at 

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Last Reviewed
Sept. 6, 2023
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