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Find the right resource
Every resource for your needs
We are committed to providing patients with the education they need to cope with PKD. Approved by our Scientific Advisory Committee, these resources will answer some of your most specific questions about the disease.
Browse by Category
The basics of PKD
If you're just diagnosed or looking for a refresher, this will cover all the basics of the disease.
Transplantation
It is important to educate yourself and your family about transplantation as early as possible so that you are prepared.
Living with PKD
Staying positive and living your best life is key to staying healthy. This will cover ways to help you do this.
Dialysis
Dialysis is a kidney replacement option that does some of the things healthy kidneys do. It is needed when your own kidneys fail or can no longer function well enough to take care of your body’s needs.
Young children
Children with ARPKD and ADPKD require special care and consideration. These resources cover key aspects in of managing the disease in young children.
Teens and young adults (13-20)
Teens and young adults have their whole lives ahead of them but living with PKD requires some extra attention. This section will cover the special needs of a teen and young adult living with PKD.
Polycystic liver disease
Liver cysts are not uncommon for PKD patients to experience. This covers the basics of polycystic liver disease (PLD).
Caregiving
Caregivers work tirelessly to support their loved ones with PKD. This will cover ways these dedicated people can best help their loved one by remembering to take care of themselves as well.
Basic research and studies
Basic research to understand PKD is the foundation that all therapy development is based on. Learn about key discoveries and the ongoing effort to find a treatment and cure for PKD.
Drug therapy and treatments
Learn about potential treatments for PKD that are in the pipeline and being employed in other areas of the world.
Health insurance
Paying for health-related expenses is a complicated and stressful business. We provide information to help you navigate through this as best you can.
Advocacy
Statistics support our messages and add credibility. Here are some helpful resources about PKD to take with you and leave with the person you are meeting with.
Researchers
The dedicated individuals who have made it their career to research polycystic kidney disease have a variety of expertise and focus areas.
Physicians
Nephrologist, urologist, surgeon, anesthesiologist, oh my! So many types of physicians make up a PKD patient's medical care team.
Grants and funding
We are the second largest funder of PKD research in the United States. This shows the amazing research we have funded over the last three decades.
Complete and continuing series
This is an exciting time for the science of PKD. We will keep you up to date with information about what’s happening in PKD research and how people like you are bravely living their best lives despite PKD.
Webinar Wednesdays
Webinar Wednesdays, with PKD Foundation Chief Scientific Officer (CSO) David Baron, Ph.D., occur the third Wednesday of each month at Noon Central Time. These chats highlight targeted topics pertaining to the science of PKD.
PKD Progress
Our PKD Progress magazine covers the latest in polycystic kidney disease research and information. PKD Progress wouldn't be available without your help and interest in finding a cure for PKD.
Great reads
There are some great books out there that touch on the many aspects of PKD. Some have storylines about PKD, others are written by volunteers and friends of the foundation. A percentage of the sales of these books will be donated to the Foundation.