News and Information
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The San Francisco Chapter rounded out 2014 with our 6th annual PKD Event at Kiehl’s in Berkeley. It was a lot of fun and a fundraising success bringing in more than $1,500 to support the mission of the PKD Foundation. We appreciate the efforts of Kim Kupferer in organizing the event and to Kiehl’s Berkeley store manager Maria Shalita for her ongoing support to our chapter.
Our focus is always PKD patients and their friends and families. We hope the information provided here and on our website is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at SanFranciscoChapter@pkdcure.org.
About 50 people turned out for our educational meeting at UCSF on Jan. 24. We were excited to learn about the opening of the new PKD Comprehensive Care Clinic at UCSF. Our featured speaker was Dr. Meyeon Park, head of the clinic.
It is not too early to be thinking about the 2015 Walk for PKD! Our walk will take place at Mission Bay Park in October! We are looking for sponsors so please contact us at SanFranciscoWalk@pkdcure.org with your ideas. There are lots of opportunities to be involved in the Walk!
Bay Area musician receives a kidney transplant.
Sarah and Jesse Brewster gave each other their hearts quite a few years ago and now, right after Valentine's Day, Sarah is also giving her husband one of her kidneys. Watch a video of their story.
Local Events and Meetings
Chapter Education Meeting
If you have any questions about our support meetings or are interested in attending please email our Volunteer Chapter Coordinators, Lynn & Susan at firstname.lastname@example.org
Chapter Support Meeting
Kiehl's Berkeley Shopping Night
Thank you to the San Francisco Chapter members, Kiehl's Berkeley and many 4th Street Merchants for making the 6th annual Kiehl's shopping night a success. Guests enjoyed a raffle, holiday shopping, a lovely spread and socializing - all for PKD. More than $1,500 was raised to support the mission of the PKD Foundation.
San Francisco Walk for PKD
September 26, 2015
Mission Creek Park
Registration is now open!
To learn more about the San Francisco walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.