Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Walk for PKD – Your Way
Walk for PKD – Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD – Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!
If you have questions, or would like to help with next year’s walk, please reach out to us at walkforpkd@pkdcure.org.
|
|
Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Mark Fisher
PKD Connect Ambassador
I grew up in Simi Valley, CA and from a very young age, I rode my horse to school. I am blessed to be married to the most beautiful woman and we have four children and six grandchildren. It is with so much joy and satisfaction I have been able to see all four of my children mature into beautiful adults and fantastic parents.
A major event happened to me that greatly changed my views towards life.
In 2014, I was diagnosed with two different types of stage four kidney cancer and PKD. My left kidney was removed but PKD had formed clusters of cysts around my remaining kidney and other organs. However, due to my persistence in learning everything I could I became a vegan/vegetarian, a fan to research and developed a new perspective in life. The most important moments, even though some are sad, in my life have changed me forever; I am ambassador for helping others and a loyal supporter and advocate for those in need.
It is with such honor that I have been selected as the PKD Connect Ambassador for the San Francisco Community of the PKD Foundation. In addition to volunteering with the PKDF, I am a founding member of UCLA’s Advisory Board for Patient Records and My Chart system.
Page last updated December 2022
