Research & Medical Resources

The PKD Foundation is pleased to present a wide range of PKD-related information to help researchers and medical professionals better understand and cope with PKD. Patients interested in learning more should check out our Learn section.


For Medical Professionals

To provide medical professionals in depth information about various aspects of polycystic kidney disease (PKD), the PKD Foundation has teamed up with UpToDate®. UpToDate is an evidence based, peer reviewed information resource, available via the Web, desktop computer, and PDA.

The following UptoDate topics related to PKD are available:

Learn more about UpToDate.


For Researchers

In 1984, the PKD Foundation funded its first research grant for $25,000. In 2008, the PKD Foundation funded nearly $4 million in PKD research. In fact, PKD scientists funded by the PKD Foundation have progressed from identifying mechanisms of cyst formation and growth to conducting clinical trials to test therapies in humans - unprecedented success in biomedical research.

PKD ResearchRequest For Application For Research Grant Funding in PKD

For decades, the PKD Foundation has funded research aimed at accelerating treatment to patients so that one day no one will suffer the full effects of PKD. We are excited to announce that the Foundation has once again released a Request for Application (RFA) for proposals focused on the basic science of PKD and on the development of PKD therapies. Applications focused on childhood PKD are also encouraged. For RFA information, click here. It is anticipated that 12 two-year grants will be funded.

The Foundation previously funded research grants from 1984-2009. A successful example is the Foundation funding of early preclinical animal testing of a precursor of tolvaptan. Tolvaptan completed clinical trials in early 2012, and the results of that trial are currently in review by the FDA in consideration of approval for tolvaptan's use to treat ADPKD.

We are excited about the opportunities the research grant funding program will bring to help end PKD.

Order PKD Educational Materials
To better serve you and your patients, we've created several free PKD educational materials for your office and waiting room.  Please contact Michelle Davis at to learn what information is available.

The PKD Foundation is not an accredited medical institution. It is a non-profit organization committed to raising funds for PKD research and awareness for one of the world's most common, life-threatening genetic diseases.

Contact Us

Lorrie Rome
Integrated Research and Development Director
(816) 931-2600 •

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

International: Canada Canada  France France  Germany Germany  Italy Italy  Japan Japan  United Kingdom United Kingdom