Celebrating Progress Toward Treatments

My evening at the Tolvaptan Extravaganza Gala  If someone would have told me when I was 19 and on death’s doorstep because of PKD, that in 13 years I would share my triumph over adversity by attending the launch of the first treatment for PKD in Canada – my family and...

More Than Just Patients

As a patient, one must possess a multitude of skills. We become our own administrative assistant by scheduling our medical appointments and the phone calls, paperwork and documentation involved in coordinating our care. We fill the role of a medical biller as we...

Our Endurance Run

Being an athlete involves training, some natural-born talent, strength, stamina and an immense amount of determination, dedication and drive. Noah and I watched athleticism at its finest on the morning of June 28. We stood by the finish line of The Western States...