Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Donor Dialogue: Voices of Living Donors
Event Description:
A free virtual webinar hosted by the University of Maryland School of Medicine. Hear firsthand stories and insights from individuals who have donated a kidney, and get your questions answered by a Living Donor Kidney Transplant coordinator from UMMC.
|
|
Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Taslima Rahman
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Carol Mainolfi
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
Welcome to the Baltimore Community. I volunteer with the foundation to share my experiences as a transplant patient and parent of PKD. By working as a Walk Ambassador I am able to help spread awareness about this life threatening disease and help raise funds for further research. Together we can unite to fight PKD!
Page last updated September 2024
