Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Nashville
Walk for PKD
Saturday, October 19
River Park
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/nashville.
If you have questions, email us at nashvillewalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Chan Schanie
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Chan Schanie lives in Nashville TN with Andy, her husband of twenty-five years, and their 3 Boston Terriers. She has worked in healthcare and customer service for over twenty years. Along with volunteering numerous healthcare related events and fundraisers,Chan served as a Big Sister in the Big Brothers/Big Sisters program. In her spare time, she enjoys working out at Pure Barre and meeting friends for coffee and wine tasting dates. Chan and Andy enjoy traveling as often as they can both abroad and domestically, and their plan is to visit all 50 states. They have visited 38 so far! They also enjoy evenings at home watching hockey and movies. Chan looks forward to meeting the Nashville PKD community and sharing her passion for PKD awareness. PKD directly affects her and getting involved with the PKD Foundation will give her the opportunity to advocate for herself and others. Chan believes there is strength in numbers and together our community can make a difference.
Maggie Grandon
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I began volunteering with the PKD Foundation in 2009 as the National Capital Walk Coordinator. In 2019, my partner and I moved to Nashville and I now serve as the Nashville Walk Co-Coordinator. PKD affects my immediate and extended family and I volunteer my time as a way to raise money to support research that will find a treatment to #endPKD!
Page last updated February 2024
