Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Boston
Walk for PKD
Saturday, September 21
Artesani Park Brighton
Registration/site opens: 9:30 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/boston.
If you have questions, email us at bostonwalk@pkdcure.org.
PKD Benefit Concert
The Eleuthera Trio is organizing and performing a benefit concert to raise awareness of polycystic kidney disease and funds for the PKD Foundation. This concert is in memory of Trio member Lois Shapiro’s brother Paul Steven Shapiro (1947-1981), who died from PKD. This is also a concert in support of all those struggling with this genetic disease which results in kidney failure requiring transplantation for survival. We hope you will join us for an afternoon of music and community, including an introduction by special guest Michele Karl, PKD Foundation parent community ambassador.
Admission is free, donations gratefully accepted.
Program:
Poulenc Trio
Mozart Kegelstatt Trio
Intermission
Dvorak Dumky Trio
Event Details:
Saturday, October 5, 2024
3:00 pm
First Unitarian Universalist Society
1326 Washington St.
Newton, MA
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Dean Lotito
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
I started volunteering for the Foundation in 2002. I was overwhelmed by the dedication of my fellow volunteers, and that continues to this day. Helping people cope with PKD, and raising money towards a treatment and cure are very rewarding for me. The people I met through my work with the Foundation inspire me to HELP END PKD!
Mike Skinner
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I am back as the Walk for PKD Ambassador for the Boston Walk.
Page last updated February 2024
