Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
New Jersey Community Meeting
Join us for our upcoming community meeting via video conference! Share your PKD journey and hear from others within the community who understand what you’re experiencing.
Event Details
Tuesday, October 01, 2024
6:30 pm – 7:30 pm eastern
Video conference link will be emailed upon registration.
2024 New Jersey
Walk for PKD
Sunday, September 29
Mercer County Park
Registration/site opens: 10 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/newjersey.
If you have questions, email us at newjerseywalk@pkdcure.org.
Susan R. Knafel Polycystic Kidney Disease Center
Open House for the PKD Community
Meet Rogosin’s PKD care team and others with PKD. Share experiences and ask questions. Featuring two small group sessions:
Discussion topics:
Havine a PKD-free child
Tolvaptan tips and tricks
Preparing for living with a kidney transplant
Tips for those newly diagnosed with PKD
Talking to your children with a 50% chance of having PKD
PKD issues beyond the kidney
Nutrition in PKD
Psychological aspects of PKD
For more information, download our flyer.
Event Details
Sunday, September 22, 2024
2-4 pm eastern
505 East 70th Street, 2nd floor
Please RSVP by September 8
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Janet Gitterman
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
My journey with PKD began fifteen years ago, when I was diagnosed. My father was the first in his family to have this disease, and we recently found out that our son also has it. I am a strong believer in self-advocacy and learning as much as I can about PKD. I have attended National Conventions, state sponsored programs, and PKD walks, and have participated in several clinical trials, including the Tolvaptan study.
I have enjoyed being a PKD mentor and try to lend support and encouragement to people who are also experiencing this disease. I am excited to serve as the PKD Connect Ambassador in New Jersey.
On November 17, 2021, I received a preemptive transplant with my husband as my donor! Post-transplant I have become involved in the NJ Sharing Network, which promotes organ donation. Presently retired, I spent my career as a social worker and art therapist.
Stacey McClain
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I’m the Walk for PKD Ambassador for New Jersey because I want to know I’m doing everything I can to end PKD. I’m helping my friends, family and community learn more about PKD and have a little fun along the way at the biggest PKD event in the state each year.
Page last updated April 2024
