I found out I had PKD 10 years and 5 months ago, one month after I got married. A routine blood test showed I had a raised level of creatinine. I didn’t even know what creatinine was. It was 1.8. They sent me for a 24 hour urinalysis, which led them to send me for an ultrasound. No one else in my family has this disease. I even went for genetic testing to confirm (we were considering pregnancy at the time). 10 years later, my creatinine is 4.99 and my GFR 9. I am so blessed to say that I recently received a kidney transplant from my husband. So far, everything is going well! I am extremely lucky to have avoided dialysis by receiving a living donor kidney when I did.