Emotional Balance

PKD makes us endure so much physically that it can take a toll on us emotionally. Our emotions can keep us stagnant, propel us forward or hold us back. Sometimes we don’t have full control over our health, but we may have some control over our emotional wellbeing. Our...

Adapting to Change

Life has taught me how adaptable we are to change and how fun change can be. Today marks six years since Noah and I arrived in Auburn, Calif. following our month-long cross-country move from Pennsylvania to California. I couldn’t be happier or prouder of our decision...

To My Younger Self

I’ve learned a lot from living with PKD since the age of 10. PKD and the health issues I’ve endured have taught me all facets of strength, emotionally and physically. I believe what we go through in our youth has a large impact on our future. We learn and grow from...

Build Your Community

I think people would be surprised if they knew how many PKD patients live close to them. I spent a little over a decade after being diagnosed at age ten without ever knowing or crossing paths with anyone outside my family with the disease. The only reason that changed...

The Exceptions

When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You will probably follow your same family history and not be affected until your late 40s to early 50s,” but my mom and I are the exception to this statement. Looking back at...