How I Honor My Donor

Actions speak louder than words. A mere “thank you” to my living kidney donor, Sally Robertson, seems inadequate as I’ve been afforded the past 13 years and 8 months of living because of her decision to donate life. I choose to thank and honor Sally by the way in...

Nothing is a Coincidence

Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spread on social media the past couple of weeks. We should be proud of the difference we’ve made this month and strive to keep that momentum going. On this last day of...

Everyone Has a Story

We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiver to someone who has PKD, you have a story to tell. Some of us are more private than others or too sick to share, and that is OK. When I speak about my...

Education = Empowerment

I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter Relations Manager and shortly thereafter created the South Central PA...