by admin | Jun 18, 2015 | PKD Will Not Beat Me, Transplantation
It has been nearly 13 years since I was given the precious gift of life. When I received my kidney transplant I was not only given a second chance, but the responsibility to care for the special gem I carry inside me. I look at this responsibility as an honor. I’ve...
by admin | Jun 11, 2015 | PKD Will Not Beat Me
When I think back to my PKD cyst bleed episodes in middle school and high school, I realize I did not talk to many people about what was happening to me. My parents, doctors and school nurse were the ones aware of my condition. If I were to talk on a personal level of...
by admin | Jun 4, 2015 | PKD Will Not Beat Me
Sometimes what may seem like a simple gesture or action can prove to mean a whole lot to someone else. I had a ‘fall in love all over again moment’ with Noah last weekend. We attended a PKD support group meeting in Sacramento. I was standing with a few other people....
by admin | May 28, 2015 | PKD Will Not Beat Me
In preschool, we are given snacks and nap-time to refuel. In grade school, we have recess to burn off energy and help us focus. In high school, we are given breaks between class periods to talk, walk and clear our minds before the next class begins. With...
by admin | May 21, 2015 | PKD Will Not Beat Me
Nobody likes a setback. I’ve learned that downtime gives us more time to think, which sometimes can be to our benefit and other times not. I find it interesting the thoughts that sporadically cross our minds. I had the thought the other day that I may never be able to...