Were you recently diagnosed with PKD? Living with PKD? Have a loved one with PKD? Looking for hope and inspiration? Welcome to PKD Will Not Beat Me! My mission is to provide Positivity, Knowledge and Determination as you navigate your individual path in life.
This is PKD Will Not Beat Me’s first blog post shared on PKD Connection, however PKD Will Not Beat Me launched on June 21, 2012, with its first blog post Positivity – Knowledge – Determination. Today marks my 112th blog post.
The woman behind the words: I am 31 years old and have lived with PKD for 21 years. I have endured all aspects of the disease from a bilateral nephrectomy, to dialysis and a kidney transplant 12 years ago. As with many PKD families, this disease has had a devastating impact on my family history. It was not until my early 20s that I discovered the PKD Foundation and that others outside of my family were affected by PKD. At that point, it became my passion to provide support, hope and inspiration to those living with PKD and their families. My goal is to exemplify that one can live a fulfilling life post-transplant and with an incurable disease.
I have been a devoted volunteer for the PKD Foundation since 2004. Since my kidney transplant in 2002, it has been an honor to share my story at more than 80 events across North America, raising awareness of PKD and organ donation. I live life enthusiastically, make the most of every day and am passionate about life and giving back. I live in northern CA with my dear husband, Noah. We love nature, travel and exploring the great outdoors.
Over the course of writing this blog over the past two years, I have shared moments of triumph and of challenge:
10 Acts of Kindness
The milestones of my kidney transplant anniversaries and how I have celebrated them.
A Breath of Fresh Air
What inspires me in life, like nature and the beauty that surrounds us.
Family Tree of PKD
How PKD has had an impact on my life and my family.
Filling the Void
I’ve discussed serious PKD topics such as having (or not having) children.
Body Image and a PKD Belly
How our body image can change from our enlarged PKD kidneys.
Message of Love From My Donor
My kidney donor shared why she gave me her kidney.
I have shared moments that have touched me greatly.
My blogs have been written from my home, in airplanes and in hospital beds. Whether the posts are full of excitement or of a serious nature, they are all written with a positive tone.
We did not ask for PKD, but we still have control of how we lead our lives. It is important to be proactive, take the best care of ourselves and live life one day at a time. A lot of our journey depends on staying positive. My goal for PKD Will Not Beat Me is to encourage positivity and provide hope by sharing my first-hand experiences, knowledge and what inspires me. Please know you are not alone. I hope you’ll join me in saying, “PKD Will Not Beat Me.”
If this is your first time reading PKD Will Not Beat Me, thank you very much! I hope you enjoy my blog and welcome to the PKD family.
To my faithful readers, thank you for your continued support of PKD Will Not Beat Me and welcome to its new home. Please subscribe to PKD Connection so you won’t miss my weekly posts every Thursday.
I encourage you to suggest any topics that you would like me to write about in the future.