PKD Connection Blog

“I’d like to talk to you in person next month about a transplant.” I heard these words from my primary sclerosing cholangitis (PSC) specialist over the phone in December when I was hospitalized for the fourth time with sepsis. The […]

When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circle of support, who are most impacted by my health, are my husband, Noah, and my parents. All three of them […]

“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist. This great advice, while sometimes easier […]

Giving back has been a very important part of my journey since 2004 when I first learned of the PKD Foundation. I founded a local Chapter in Pennsylvania and shared my story in front of an audience for the first […]

Sickness never comes at the right time. When living with chronic health issues, it’s likely that we’ll miss out on important things in our lives. We need to be ok with the fact that things we’re looking forward to – […]

There are certain days in our lives that will never be forgotten, either by choice or because the significance of them are burned into our memories. For me, Oct. 12 was one of those days. I was at California Pacific […]

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