PKD Connection Blog

Sometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. For me, it was a hospital food tray. On Dec. 2, 2017, I woke up severely ill with a high fever. […]

I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself and others. However, there is always room for improvement and I have one area that has been a struggle for me: accepting […]

My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us out for a week. He took me to San Francisco for a liver procedure that I needed as part […]

I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their knowledge, skill […]

Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s Day, I wanted to […]

“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment from my kidney donor, Sally, was part of […]

“I’d like to talk to you in person next month about a transplant.” I heard these words from my primary sclerosing cholangitis (PSC) specialist over the phone in December when I was hospitalized for the fourth time with sepsis. The […]

When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circle of support, who are most impacted by my health, are my husband, Noah, and my parents. All three of them […]