PKD Connection Blog

Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s Day, I wanted to […]

“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment from my kidney donor, Sally, was part of […]

“I’d like to talk to you in person next month about a transplant.” I heard these words from my primary sclerosing cholangitis (PSC) specialist over the phone in December when I was hospitalized for the fourth time with sepsis. The […]

When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circle of support, who are most impacted by my health, are my husband, Noah, and my parents. All three of them […]

“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist. This great advice, while sometimes easier […]

Giving back has been a very important part of my journey since 2004 when I first learned of the PKD Foundation. I founded a local Chapter in Pennsylvania and shared my story in front of an audience for the first […]

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