PKD Connection Blog

A couple weeks ago, on the evening of August 12, my husband Noah and I were sitting in beach chairs along the shore of Lake Tahoe. We were watching the sun set behind the Sierra Mountains with the soothing sound […]

I believe health issues become harder to face as we age. As children, we don’t analyze and worry about things the same way we do as adults. When growing older, the focal point we have on ourselves broadens and opens […]

When you live with chronic health issues, the definition of a good day can be much simpler than what most people think. I have also learned that we cross paths with people for a reason. There are individuals in the […]

In a split second our world and our health can change dramatically. We can go from being healthy to severely ill, thinking we are fine while relaxing on the couch and then spiking a fever and dry-heaving while calling 911. […]

I flew to my birthplace of York, Pa. at the beginning of May to say my goodbyes to my paternal grandmother, who passed on April 11, 2017, and to support my family. I stood in the mausoleum where my grandmother […]

Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I am so grateful to be in Pennsylvania with you today […]

“More than 80 percent of those with chronic, invisible illnesses downplay their true feelings to make others feel more at ease.” * This statistic really hits home. Can you relate to this, too? For those of us without a “PKD belly,” […]

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