PKD Connection

“All we are really looking for is connection, direction and meaning.” – Lucia Steele

Living with PKD is a life of acceptance, fear, patience, strength, love and change. We yearn for connecting with others that ‘get it.’ We want to be given direction on how we can get answers on our health and feel better. All the while, we desire a life full of meaning, despite the challenges and changes set before us. It is important to look through positive lenses knowing change can reveal how strong we are and what we are capable of accomplishing. Change can lead to wonderful new adventures. October 13th kicks off a new venture for the PKD Foundation and the PKD Will Not Beat Me blog. The 13th is surrounded by good omens: my mother-in-law’s 60th birthday, the 12-year and 2nd month anniversary of my kidney transplant, and the launch of the new PKD Connection blog.

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The new and exciting PKD Connection blog will serve as a hub and destination for my blog, PKD Will Not Beat Me, and the PKD Health Notes blog. It will provide the PKD community a place to gain tips to proactively manage your or a loved one’s health, hear the latest news from the PKD Foundation, and have a conversation with other PKD patients and families. PKD Connection will provide a wide array of topics for the PKD community with the hope to reach a broader audience. The mission of PKD Will Not Beat Me is to encourage Positivity, Knowledge and Determination. This “call of duty” will remain strong.

“What we’re all striving for is authenticity, a spirit-to-spirit connection.” – Oprah Winfrey

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Our PKD family and community continues to grow and evolve. The PKD Foundation’s blogs are following that “Onward and Upward” path as PKD Will Not Beat Me is given a new platform to spread strength and hope to its readers. The expectation for this new stage is to allow more people to learn of PKD, have more information provided on a weekly basis, and draw in a larger group of people for you to relate and connect with. Blogs consist of mere words but every word/blog I share is written with love. My hope is for you to connect with my words, be inspired and know you are not alone. I look forward to “seeing” you next week on PKD Connection.

“Love is a word. What matters is the connection that word implies.”-The Matrix Revolutions

Do you have any questions about the new blog? Are there any topics you would like to see shared on PKD Will Not Beat Me?

NOTE – if you are already subscribed to PKD Will Not Beat Me, you will automatically receive a message when a new article is posted on PKD Connection.

6 Comments

  1. Casey

    Awesome. Looking forward to this!

    Reply
    • Valen Keefer

      Hi Casey,

      Thank you! Makes me very happy to hear this. Hope you enjoy PKD Will Not Beat Me’s new home, PKD Connection!

      Reply
  2. Amy Dixon-Eggebroten

    You are an eloquent writer and have survived tough medical challenges, so it reminds us that we are not alone! It would be cool to hear what helped comfort you during your dialysis experiences (your routine, ice chips, inspirational people).

    Reply
    • Valen Keefer

      Hi Amy,

      Thank you for your kind words and continued support. This is a fantastic suggestion for a future blog post. I appreciate you sharing this.

      Reply
  3. Vicki Wolfe

    VALEN!! Love the new look and look forward to sharing your journey. Thanks for including us.

    Vicki

    Reply
    • Valen Keefer

      Hi Vicki,

      Thank you for your support and enthusiasm towards this new stage for PKD Will Not Beat Me. I hope you are well. Big hugs!

      Reply

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