I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself and others. However, there is always room for improvement and I have one area that has been a struggle for me: accepting help. I’m a 35-year-old, married,...

My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us out for a week. He took me to San Francisco for a liver procedure that I needed as part of the process for getting approved to be listed for a liver...

I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their knowledge, skill and guidance. I look at the doctor/patient...

Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s Day, I wanted to do a special Q&A with her. I sat down with my...

“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment from my kidney donor, Sally, was part of a moving conversation we shared...