For many of us, we have to deal with PKD personally and also handle the emotions our loved ones endure because of the disease. My mom, at 59 years old, is the oldest to survive in our immediate family from PKD. All other family members on mom’s side of the family...

There is one question I have been asked more than any other. “How do you stay so positive?” When thinking of all that I have to endure, there are times I wonder the same thing. We each have different dispositions that make us the special individuals we are. These...

As a child, the days seem so long. That feeling changes quickly as we grow older and the word “bored” vanishes from our vocabulary. I have entered the age range where time feels fleeting and the years are flying by. It is hard to fathom that today marks my 13-year...

“What’s the special occasion?” I’m sure you have heard this question when someone sees you dressed up, if you mention an upcoming trip, bake a cake, or purchase something out of the ordinary. I think it is more fun to do something special spur of the moment rather...

My evening at the Tolvaptan Extravaganza Gala  If someone would have told me when I was 19 and on death’s doorstep because of PKD, that in 13 years I would share my triumph over adversity by attending the launch of the first treatment for PKD in Canada – my family...

As a patient, one must possess a multitude of skills. We become our own administrative assistant by scheduling our medical appointments and the phone calls, paperwork and documentation involved in coordinating our care. We fill the role of a medical biller as we...