PKD Will
Not Beat Me
Navigating nutrition
Our diet and how we approach nutrition changes as we age, especially as a PKD patient. When we’re younger, we are either too busy playing to worry about food or aren’t focused on the importance of what we put into our bodies. Then, as we age, we start becoming...
Communication within PKD families
I look at PKD as a family disease. For those of us who are not victims of a spontaneous mutation of PKD, it is likely that we are surrounded by numerous family members who are battling the same disease. One would think that we'd have great support surrounding us,...
Life is coming up roses
I love when an idea unfolds organically, with serendipitous surprises along the way that lead one to believe it was all meant to be. This is what happened with my 15-year kidney transplant anniversary event. I felt that reaching such a milestone deserved a...
Tips for caring for yourself during hospital stays
One of the first things I love to do when I’m home for the night is put on my comfy clothes. There is something so nice about being cozy in your own home. Our homes are our safe places—with things, people and pets that fill our hearts with joy. It is also the best...
Celebrate life
A couple weeks ago, on the evening of August 12, my husband Noah and I were sitting in beach chairs along the shore of Lake Tahoe. We were watching the sun set behind the Sierra Mountains with the soothing sound of water splashing against the shore, the refreshing...
A letter from a transplant recipient to her donor
Dear Sally, Many of us only get one chance at life. A chance to grow up, dream big, find our purpose and fulfill it. Looking back, when I was a teenager, I did not have many dreams or plans for my future. I didn’t envision the man of my dreams, my perfect wedding,...
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Our diet and how we approach nutrition changes as we age, especially as a PKD patient. When we’re younger, weRead More
-
I look at PKD as a family disease. For those of us who are not victims of a spontaneous mutationRead More
-
I love when an idea unfolds organically, with serendipitous surprises along the way that lead one to believe it wasRead More
-
One of the first things I love to do when I’m home for the night is put on my comfyRead More
-
A couple weeks ago, on the evening of August 12, my husband Noah and I were sitting in beach chairsRead More
-
Dear Sally, Many of us only get one chance at life. A chance to grow up, dream big, find ourRead More
Page last reviewed November 2022