Before Noah and I moved from Pennsylvania to California in May of 2010, he asked my dad for my hand in marriage. My father said yes, but was honest with him and cautioned him that our future together may not be easy because of my health. I recently found out that...

We all have different perspectives on life and living with PKD. Our uniqueness makes the world a beautiful place, and we can all learn and grow from each other. After speaking to more than 85 audiences across North America over the years, I’ve received an array of...

As children, we are encouraged to get involved in pastimes such as sports, clubs and hanging out with friends. I recall doing ballet, gymnastics, singing lessons, piano and sleepovers with friends. When you talk to parents, it almost seems like their main job is to...

Awareness is a big part of my life: being aware of my health, how I am feeling, knowing that I am taking the best care of myself and being an educated patient, being mindful of others and understanding how I can help them along their journeys, and spreading...

Disclaimer: This post contains an instance of graphic detail regarding the effects of internal bleeding. Noah and I have lived across the country from family and friends for six years. We often say that we spend more quality time with them versus quantity time...

Some things are too grand for the mind to comprehend. For example, I am having trouble processing that my 14-year kidney transplant anniversary will be two days from now. It’s hard to think that, 14 years ago, I was basically on my deathbed. There were, however, a...