Welcome to the

Pittsburgh

Chapter

About us

With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Fill out this form to receive information about local activities.

Pittsburgh Chapter members
on Pittsburgh Sunday Morning

Aaron Hassett, Lisa Heron, Cameron Guthrie and Dr. Kumar talk about PKD, promote the Walk and share their stories with Jonny Hartwell, on Pittsburgh Sunday Morning, 3WS Radio (WWSW-FM).

This year’s PKD Connect Conference brought together patients, caregivers, health care providers, and researchers from the safety of their homes. This virtual event featured the latest in research and treatment options while providing opportunities to interact with faculty and other participants.

Recorded PKDCON sessions are now available to watch. Filter by topic or audience or simply search “PKDCON” to view. Watch the recorded sessions now.

Registration for our 2021 Walk for PKD is now open! This year’s 10-day virtual event will bring the best of last year’s Walk and some fun surprises.

Join us on October 8–17, 2021 to help us reach our $1 million fundraising goal to #endPKD. Find your local Walk and register today at walkforpkd.org.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Kristee Adams

Chapter Coordinator

I joined the PKD Pittsburgh Chapter over 10 years ago after being diagnosed. With such a great group of people in the Chapter, taking on a leadership role was easy. While PKD impacts all of our lives, we work hard to hopefully lessen the impact on our children and grandchildren.

Nancy Kaminski

Education Coordinator

Three generations of my family have been affected by PKD and in 2013, I had a successful kidney transplant. I have been involved with the Pittsburgh Chapter for more than 10 years, and Walk Coordinator from 2009–2018. I have met so many people and made good friends through my association with the Foundation — it is a great source of networking and support for those with PKD!

Aaron Hassett

Walk Coordinator

Page last reviewed June 2021