Welcome to the

Pittsburgh

Chapter

About Us

With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

Walk for PKD 2020 Virtual

The Walk for PKD is going virtual!

This year, everyone can participate where and how they feel safest. 100% of each donation funds life-saving research. To be a part of the largest fundraiser for PKD:

  • Find your local walk and register at walkforpkd.org.
  • Invite your friends and family to donate to the Walk for PKD.
  • Engage with us during the "10 day. One goal.” event Oct. 9–18.
  • Share on social media why you walk for PKD. Use the #walkforpkd and #whywewalk hashtags.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Kristee Adams

Chapter Coordinator

I joined the PKD Pittsburgh Chapter over 10 years ago after being diagnosed. With such a great group of people in the Chapter, taking on a leadership role was easy. While PKD impacts all of our lives, we work hard to hopefully lessen the impact on our children and grandchildren.

Nancy Kaminski

Education Coordinator

Three generations of my family have been affected by PKD and in 2013, I had a successful kidney transplant. I have been involved with the Pittsburgh Chapter for more than 10 years, and Walk Coordinator from 2009–2018. I have met so many people and made good friends through my association with the Foundation — it is a great source of networking and support for those with PKD!

Aaron Hassett

Walk Coordinator