With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Email firstname.lastname@example.org for more information and to get involved.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
I joined the PKD Pittsburgh Chapter over 10 years ago after being diagnosed. With such a great group of people in the Chapter, taking on a leadership role was easy. While PKD impacts all of our lives, we work hard to hopefully lessen the impact on our children and grandchildren.
Three generations of my family have been affected by PKD and in 2013, I had a successful kidney transplant. I have been involved with the Pittsburgh Chapter for more than 10 years, and Walk Coordinator from 2009–2018. I have met so many people and made good friends through my association with the Foundation — it is a great source of networking and support for those with PKD!
Page last reviewed December 2020