With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
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This year’s PKD Connect Conference brought together patients, caregivers, health care providers, and researchers from the safety of their homes. This virtual event featured the latest in research and treatment options while providing opportunities to interact with faculty and other participants.
Recorded PKDCON sessions are now available to watch. Filter by topic or audience or simply search “PKDCON” to view. Watch the recorded sessions now.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
PKD runs in my family and I want to make a difference by providing the local area with resources and opportunities to connect with one another. It is rewarding to join together and learn more about what we can do to fight PKD through education, nutrition, advocacy, support, fundraising, and research.
My husband and I were involved with the PKD Walk when we moved to Portland 16 years ago. We took a break to have a baby, get a transplant, brain surgery for our 5 year old who had a brain cyst, do foster care, adopt our second child, have radiation for a benign brain tumor (myself), and survive 8 more surgeries for complications related to PKD(my husband). After all that we’re back, more determined than ever!
I’m very excited to be part of such an amazing group of people who are committed to finding a cure for this terrible disease! As my husband always says, “there’s always someone much worse than myself”, with that attitude you can accomplish anything!
Page last reviewed June 2021