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About Us

With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Chapter Updates

Portland Chapter Support Meeting

Join the Portland Chapter for our June Support Meeting via video conference. Nephrologist, Dr. Walton will discuss current transplant changes due to Covid-19. We’ll also have time to share challenges and experiences to support each other through this unique time.

Event Details:

Thursday, June 18, 2020
7–8 p.m.

Video conference link will be emailed upon registration.


Walk for PKD 2020 Virtual

The Walk for PKD is going virtual!

This year, everyone can participate where and how they feel safest. 100% of each donation funds life-saving research. To be a part of the largest fundraiser for PKD:

  • Find your local walk and register at walkforpkd.org.
  • Invite your friends and family to donate to the Walk for PKD.
  • Engage with us during the "10 day. One goal.” event Oct. 9–18.
  • Share on social media why you walk for PKD. Use the #walkforpkd and #whywewalk hashtags.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Alex Hagen

Education Coordinator

PKD runs in my family and I want to make a difference by providing the local area with resources and opportunities to connect with one another. It is rewarding to join together and learn more about what we can do to fight PKD through education, nutrition, advocacy, support, fundraising, and research.

Linda Herman

Chapter Coordinator

My husband and I were involved with the PKD Walk when we moved to Portland 16 years ago. We took a break to have a baby, get a transplant, brain surgery for our 5 year old who had a brain cyst, do foster care, adopt our second child, have radiation for a benign brain tumor (myself), and survive 8 more surgeries for complications related to PKD(my husband). After all that we’re back, more determined than ever!
I’m very excited to be part of such an amazing group of people who are committed to finding a cure for this terrible disease! As my husband always says, “there’s always someone much worse than myself”, with that attitude you can accomplish anything!