Find ADPKD care

To view a full list of centers click here.


Core services at Centers of Excellence

To be a PKD Foundation Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following disciplines:

  • Nephrology
  • Radiology
  • Nutrition
  • Hepatology
  • Genetics
  • Pain management
  • Patient navigation services
Non-core specialists

Non-core specialists available at some Centers of Excellence:

  • Pediatric nephrologists
  • Kidney nutritionists/dieticians
  • Urologists
  • Cardiologists
  • Liver surgeons
  • Neurosurgeons/neurologists
  • Obstetricians (high-risk pregnancy specialization)
  • Psychologists/psychiatrists
  • Social workers
  • Transplant surgeons
Patient Navigator

Under supervision of the Clinic Director, a patient navigator helps coordinate care for patients with ADPKD and their families and caregivers.

They work to:

  • serve as the first point of contact for patients and families with ADPKD
  • eliminate barriers to timely care
  • facilitate flow through the system
  • facilitate interactions with clinical research
  • increase patient and provider satisfaction
  • maintain point of contact with providers.
Services at Partner Clinics

PKD Foundation Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.