Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Cincinnati-Dayton
Walk for PKD
Sunday, September 8
Voice Of America Park, Athletic Complex
Registration/site opens: Noon
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/cincinnatidayton.
If you have questions, email us at cincinnatidaytonwalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Sharon Fritz
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
I have been an active member of the Cincinnati/Dayton Chapter for approximately 10 years/ I have a strong belief that through collaboration, encouragement and education, we can support all those affected by this disease and raise the necessary funds to continue the fight for treatments and a cure through research! There is so much hope for the future!
David Young
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I started my involvement with the PKD Foundation on the Patient Advisory Group which helps oversee the Patient Registry. I am new to the Cincinnati/Dayton Chapter and the Walk for PKD. I am looking forward to getting back to in-person walks as we work to raise awareness and money for the important research that the PKD Foundation is doing. If you would like to know more about the walk or to be a volunteer on the team, please reach out.
Page last updated February 2024
