Welcome to the
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Are you interested in helping us grow the Detroit Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at email@example.com.
The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!
The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.
Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.
Join us for our second virtual conference June 24 – 25.
Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
Walk for PKD Ambassador
PKD has affected my family for at least three generations. As a few of my older cousins began to experience kidney failure due to PKD, my four sisters and I were tested and three of us were diagnosed with the disease. I was in my late thirties at the time and began a yearly check with a highly regarded nephrologist. I had no symptoms, no high blood pressure, and no pain for nearly twenty years. In my mid-fifties, I developed anemia and some loss of appetite therefore weight loss but no pain or high blood pressure. When my kidney function declined to the point of needing a transplant, I first had a nephrectomy of my right kidney (to make room for the transplanted kidney) and received several weeks of dialysis while healing. On September 7, 2011 I was blessed to receive my selfless, loving sister’s kidney and continue to feel great today!
Now that I’m retired from teaching and my children are on their own, I’m excited to be able to give my time to the PKD Foundation with the Detroit Walk. With our support, the Foundation will continue with breakthrough research and discover better treatments and one day a cure for PKD! Looking forward to seeing you at the Walk!
Page last updated March 2022