Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Get Involved

Are you interested in helping us grow the Detroit Community?

We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.

If you have questions, please email us at volunteers@pkdcure.org.

Detroit Community Meet-Up

Join us for our Detroit meet-up via video conference. Share your journey and hear from others within the PKD community who understand what you are experiencing. We will also share resources to help you manage living with PKD. 

Event Details

Tuesday, April 11, 2023
7  pm – 8:30 pm

Video conference link will be emailed upon registration.

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

This could be you!

PKD Connect AMbassador


Interested in volunteering in your Community? Complete our Become a Volunteer form or email volunteers@pkdcure.org. 

Beth Skorupski

Walk for PKD Ambassador

PKD has affected my family for at least three generations. As a few of my older cousins began to experience kidney failure due to PKD, my four sisters and I were tested and three of us were diagnosed with the disease. I was in my late thirties at the time and began a yearly check with a highly regarded nephrologist. I had no symptoms, no high blood pressure, and no pain for nearly twenty years. In my mid-fifties, I developed anemia and some loss of appetite therefore weight loss but no pain or high blood pressure. When my kidney function declined to the point of needing a transplant, I first had a nephrectomy of my right kidney (to make room for the transplanted kidney) and received several weeks of dialysis while healing. On September 7, 2011 I was blessed to receive my selfless, loving sister’s kidney and continue to feel great today!
Now that I’m retired from teaching and my children are on their own, I’m excited to be able to give my time to the PKD Foundation with the Detroit Walk. With our support, the Foundation will continue with breakthrough research and discover better treatments and one day a cure for PKD! Looking forward to seeing you at the Walk!

Page last updated December 2022

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