Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 North Texas
Walk for PKD
Saturday, October 19
Southlake Town Square
Rustin & Family Park
Registration/site opens: 8 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/northtexas.
If you have questions, email us at northtexaswalk@pkdcure.org.
|
|
Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Nicole Smith
Walk for PKD Ambassador
I am the new Walk for PKD Ambassador. Ask me about the North Texas Walk for PKD!
Carolyn Morris
PKD Connect Ambassador
My life experience with Polycystic Kidney Disease in my family has motivated me to volunteer and be committed to helping others facing the challenges of PKD. I talk to many people impacted by the disease, hear their story, see their tears, and try to provide support. We are so fortunate now there is the PKD Foundation to lead the charge in focusing on research to find a treatment for this disease. Technological advances and the internet provide information and connectivity for those searching for information about PKD.
I have been a Volunteer for the North Texas Community since 2004. The Community holds various fund raising events and the signature North Texas Walk event each fall. I encourage you to reach out and get involved with the local community.
Vickie Lamb
PKD Connect Ambassador
As a dedicated Nephrology Clinic Nurse and Center of Excellence Patient Navigator, I ampassionate about supporting individuals affected by polycystic kidney disease. With years of experience in patient care, I strive to provide comprehensive guidance and education to empower patients on their journey. In addition to my clinical role, I actively volunteer with the PKD Foundation, where I help raise awareness and promote advocacy for kidney health. My commitment to improving the lives of those impacted by kidney disease drives my work both in the clinic and within the community.
Volunteering at the PKDF is important to me as a nephrology clinic nurse because it allows me to support those affected by polycystic kidney disease. By engaging with patients and their families, I can provide education, raise awareness, and foster a sense of community. This involvement deepens my understanding of the challenges they face and strengthens my commitment to
improving patient care and advocacy in the field of kidney health.
Page last updated July 2024
