Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Northeast Ohio
Walk for PKD
Saturday, September 30
New Location!
Oak Grove Park
Registration/site opens: 8:30 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/northeastohio.
If you have questions, email us at northeastohiowalk@pkdcure.org.
Get Involved
Are you interested in helping us grow the Northeast Ohio Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
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Thank you to everyone who attended and supported the 2023 Walk for PKD. Fundraising remains open until Dec. 31. Help us reach our goal by donating to your local Walk for PKD today. A cure is our finish line! |

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Ashley Heffner
Walk for PKD Ambassador
Page last updated July 2023