Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Walk Volunteer Needed!
We are in search of a key volunteer to lead efforts for the Oklahoma Walk for PKD. This volunteer leader role is vacant and the continued success of the Oklahoma Walk for PKD relies on leadership in this role and in your area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.
Email us at walkforpkd@pkdcure.org with the subject line: Oklahoma Walk Volunteer Interest and we would be happy to talk with you!
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Kim Holekamp
PKD Connect Ambassador
I’m the PKD Connect Ambassador for Oklahoma because I am the third generation of my family to have PKD and I want to make a difference for my future generations. By volunteering, I am able to build valuable connections with other families that have PKD as well as learn about important research. This is one of the most rewarding experiences I have had and I encourage you to join me as we unite to fight PKD!
Emily Florez
PKD Connect Ambassador
I am excited to join the PKD foundation as a PKD Connect Ambassador in Oklahoma to help educate about the disease. My husband’s family has been affected by PKD for generations and it was really surprising how little information there is about the disease. I hope to be an advocate for those that are affected by helping to provide resources and education. I am hopeful for the future with new research and advances for PKD.
Page last updated December 2022
