Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk Volunteer Needed!

We are in search of a key volunteer to lead efforts for the Oklahoma Walk for PKD. This volunteer leader role is vacant and the continued success of the Oklahoma Walk for PKD relies on leadership in this role and in your area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.

Email us at walkforpkd@pkdcure.org with the subject line: Oklahoma Walk Volunteer Interest and we would be happy to talk with you!

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Kim Holekamp

PKD Connect Ambassador

I’m the PKD Connect Ambassador for Oklahoma because I am the third generation of my family to have PKD and I want to make a difference for my future generations. By volunteering, I am able to build valuable connections with other families that have PKD as well as learn about important research. This is one of the most rewarding experiences I have had and I encourage you to join me as we unite to fight PKD!

Emily Florez

PKD Connect Ambassador

I am excited to join the PKD foundation as a PKD Connect Ambassador in Oklahoma to help educate about the disease.  My husband’s family has been affected by PKD for generations and it was really surprising how little information there is about the disease.  I hope to be an advocate for those that are affected by helping to provide resources and education.  I am hopeful for the future with new research and advances for PKD.

Page last updated December 2022

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