Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Walk Volunteer Needed!
We are in search of a key volunteer to lead the efforts for the Pittsburgh Walk for PKD. This volunteer position leads our participant engagement efforts and coordinates day of event logistics. If you are interested in this volunteer opportunity, please reach out.
Email us at walkforpkd@pkdcure.org with the subject line: Pittsburgh Walk Volunteer Interest and we would be happy to talk to you. Or complete our “Become a Volunteer” form below.
Pittsburgh Community Meeting
Join us to hear updates from the Pittsburgh Chapter, share your PKD journey and hear from others within the community who understand what you’re experiencing.
Attend in person or virtually.
Link to join by video conference provided at registration.
Event Details
Tuesday, July 11, 2023
6:30 pm – 8:30 pm
Hiland Church
845 Perry Highway
Pittsburgh, PA 15237
Registration for PKD Connect Conference (PKDCON) is open!
PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.
The PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Kristee Adams
PKD Connect Ambassador
I joined the PKD Pittsburgh Chapter over 10 years ago after being diagnosed. With such a great group of people in the Chapter, taking on a leadership role was easy. While PKD impacts all of our lives, we work hard to hopefully lessen the impact on our children and grandchildren.
Nancy Kaminski
PKD Connect Ambassador
Three generations of my family have been affected by PKD and in 2013, I had a successful kidney transplant. I have been involved with the Pittsburgh Chapter for more than 10 years, and Walk Coordinator from 2009–2018. I have met so many people and made good friends through my association with the Foundation — it is a great source of networking and support for those with PKD!
Page last updated December 2022