Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Sacramento
Walk for PKD
Sunday, September 29
State Capitol – West Steps
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/sacramento.
If you have questions, email us at sacramentowalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Larianne Austin
Walk for PKD Ambassador
I volunteer for the PKD Foundation for the 5 generations of my family that have been affected by PKD. My hope is that a treatment for PKD is found in my lifetime so that my daughter will not have endure the pain and suffering of PKD.
Page last updated July 2023
