Welcome to the

San Antonio

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Volunteer needed in San Antonio

We are in search of a key volunteer to help lead efforts for the San Antonio Walk for PKD. This volunteer will partner with our current Walk Coordinator this year with the intent to take on the leadership role and ensure continued success of the San Antonio Walk for PKD. This role is supported by an existing group of veteran volunteers who  share the responsibility of planning and executing the event.

If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please email us at walkforpkd@pkdcure.org with the subject line ‘San Antonio Walk Volunteer Interest’. 

San Antonio
Walk for PKD

Saturday, September 10

OP Schnabel Park, Graff Pavilion

Registration/site opens: 7:30 a.m.

We are excited to return to in-person events this fall, where you will be part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at walkforpkd.org/sanantonio.

If you have questions, email us at sanantoniowalk@pkdcure.org.

Walk Incentive weeks

You must be a registered walker to win!

Week 1

Sunday, July 24 through Saturday, July 30

Prizes will be awarded to the following:

  • Individual who raises the most money
  • Team captain of the team that raises the most money
  • Team Captain who adds the most team members during the week

Week 2

Sunday, August 21 through Saturday, August 27

Prizes will be awarded to the following:

  • Individual who raises the most money
  • Team captain of the team that raises the most money
  • Child under 15 who raises the most money

If you have questions, email us at sanantoniowalk@pkdcure.org.

ADPKD clinical trial opportunity in San Antonio

FALCON Study

Dr. Pergola at the Clinical Advancement Center is recruiting ADPKD patients to study the impact of Bardoxolone methyl on ADPKD progression. If you are interested in learning more about the FALCON study, visit our clinical trials page.

 San Antonio Chapter— In the news!

Congratulations Patti Ruffin!
2021 ACN Champion of the Year

Founded in 2020, the ACN is a group of PKD community members from across the U.S. engaged in formal advocacy efforts with federal policymakers. At the awards ceremony, we recognized two ACN Champions for their outstanding leadership and performance over the past year. Patti Ruffin, a PKD patient advocate based in San Antonio, received the 2021 ACN Champion of the Year Award. Because of her PKD awareness article featured the San Antonio Express-News and the relationship she built with her Congressman Tony Gonzales, Patti inspired other champions in the ACN and has shown herself to be an asset working on the frontline of PKDF advocacy efforts.

Ashley Garcia-Everett joins KENS5 for Great Day SA

Click here to view the segment.

Facebook Live Interview with Sarah Forgany

Sarah Forgany from KENS5 joins Walk for PKD Coordinator, Patti Ruffin live! Watch the interview.

ashley Garcia-everett interview with chrissie Murnin, cox radio

Ashley shares her son, CJ’s journey with ARPKD and promotes the San Antonio Walk for PKD. This interview aired on Sunday Sept. 19 and will air again on Sunday, Sept. 26 at 6 a.m. on KISS, KONO AM/FM, KYKX and KKYW and 6:30 a.m. on Y100 and KSMG. Listen to the interview today!

Give organ donors federal protections

San Antonio Walk for PKD Coordinator, Patti O’Grady Ruffin, recently wrote an Op-Ed that was published in the San Antonio Express-News. Read Patti’s Op-Ed and learn more about supporting the Living Donor Protection Act, here.

CJ’s gift: How a doctor couple saved thier baby’s life and gained valuable perspective on patient care

CJ was facing a future on dialysis or end-of-life hospice care. Find out how CJ is doing now and hear how his parents, both physicians, kept going through months of treatment and life-and-death decisions amd gained new perspective when treating their own patients.  Read CJ’s story.

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Session recordings from our 2022 event will be available in our Resource Library soon!

 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Mark Ruffin

PKD Connect Ambassador

I volunteer as the San Antonio Community because of my wife Patti’s medical history of PKD (hers and her family). By engaging critical partners here in San Antonio, I can help others faced with the challenges of this disease, and improve chances of finding a cure. Without others engagement, nothing happens!

Patti Ruffin

Walk for PKD Ambassador

My paternal grandmother, father, two uncles, and sister lost their battle too young to PKD. After two years on dialysis due to PKD, a generous coworker came forwarded to donate her kidney to me in December, 2005. I have been blessed with this new lease on life and retirement (2009); and I knew I needed to step up as the volunteer San Antonio Walk for PKD Coordinator. A Cure is Our Finish Line. When people ask me why I volunteer, I have three words: best paycheck ever.

Page last updated March 2022

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