Welcome to the
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Volunteer needed in San Antonio
We are in search of a key volunteer to help lead efforts for the San Antonio Walk for PKD. This volunteer will partner with our current Walk Coordinator this year with the intent to take on the leadership role and ensure continued success of the San Antonio Walk for PKD. This role is supported by an existing group of veteran volunteers who share the responsibility of planning and executing the event.
If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please email us at email@example.com with the subject line ‘San Antonio Walk Volunteer Interest’.
Thank you Duck Donuts!
During the month of March, Ben Newell, Owner of Duck Donuts in San Antonio, helped raise awareness for polycystic kidney disease (PKD) and $1000 in support of the San Antonio Walk!
San Antonio Community Meeting
Join us for our August San Antonio Community meeting! We will provide updates on all Chapter activities including the Walk for PKD and learn about the impact our first PKD Foundation Virtual Advocacy Day had for the PKD community!
There will be time to share your PKD journey and hear from others within the community who understand what you’re experiencing.
Date: Tuesday, August 9. 2022
Time: 7 – 8:30 p.m.
What topics would you like to see us address this coming year? Complete our survey and let us know what topics interest you.
For questions about local events and activities, contact Mark Ruffin at firstname.lastname@example.org.
ADPKD clinical trial opportunity in San Antonio
Dr. Pergola at the Clinical Advancement Center is recruiting ADPKD patients to study the impact of Bardoxolone methyl on ADPKD progression. If you are interested in learning more about the FALCON study, visit our clinical trials page.
San Antonio Chapter— In the news!
Congratulations Patti Ruffin!
2021 ACN Champion of the Year
Founded in 2020, the ACN is a group of PKD community members from across the U.S. engaged in formal advocacy efforts with federal policymakers. At the awards ceremony, we recognized two ACN Champions for their outstanding leadership and performance over the past year. Patti Ruffin, a PKD patient advocate based in San Antonio, received the 2021 ACN Champion of the Year Award. Because of her PKD awareness article featured the San Antonio Express-News and the relationship she built with her Congressman Tony Gonzales, Patti inspired other champions in the ACN and has shown herself to be an asset working on the frontline of PKDF advocacy efforts.
Ashley Garcia-Everett joins KENS5 for Great Day SA
Facebook Live Interview with Sarah Forgany
Sarah Forgany from KENS5 joins Walk for PKD Coordinator, Patti Ruffin live! Watch the interview.
ashley Garcia-everett interview with chrissie Murnin, cox radio
Ashley shares her son, CJ’s journey with ARPKD and promotes the San Antonio Walk for PKD. This interview aired on Sunday Sept. 19 and will air again on Sunday, Sept. 26 at 6 a.m. on KISS, KONO AM/FM, KYKX and KKYW and 6:30 a.m. on Y100 and KSMG. Listen to the interview today!
Give organ donors federal protections
San Antonio Walk for PKD Coordinator, Patti O’Grady Ruffin, recently wrote an Op-Ed that was published in the San Antonio Express-News. Read Patti’s Op-Ed and learn more about supporting the Living Donor Protection Act, here.
CJ’s gift: How a doctor couple saved thier baby’s life and gained valuable perspective on patient care
CJ was facing a future on dialysis or end-of-life hospice care. Find out how CJ is doing now and hear how his parents, both physicians, kept going through months of treatment and life-and-death decisions amd gained new perspective when treating their own patients. Read CJ’s story.
The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!
The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.
Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.
Join us for our second virtual conference June 24 – 25.
Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:
PKD Connect Ambassador
I volunteer as the San Antonio Community because of my wife Patti’s medical history of PKD (hers and her family). By engaging critical partners here in San Antonio, I can help others faced with the challenges of this disease, and improve chances of finding a cure. Without others engagement, nothing happens!
Walk for PKD Ambassador
My paternal grandmother, father, two uncles, and sister lost their battle too young to PKD. After two years on dialysis due to PKD, a generous coworker came forwarded to donate her kidney to me in December, 2005. I have been blessed with this new lease on life and retirement (2009); and I knew I needed to step up as the volunteer San Antonio Walk for PKD Coordinator. A Cure is Our Finish Line. When people ask me why I volunteer, I have three words: best paycheck ever.
Page last updated March 2022