Welcome to the

South Florida

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk Volunteer Needed!

We are in search of a key volunteer to lead efforts for the South Florida Walk for PKD. This volunteer leader role is vacant and the continued success of the South Florida Walk for PKD relies on leadership in this role and in your area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please reach out.

Email us at walkforpkd@pkdcure.org with the subject line: South Florida Walk Volunteer Interest and we would be happy to talk with you!

The 2022 Walk for PKD launches in May. Watch the Walk for PKD webpage for more updates. We look forward to you joining us for an exciting year of fundraising to support PKD research. A cure is our finish line!

The PKD Connect Conference (PKDCON) is an annual event that brings together every part of the PKD community—from patients and caregivers to researchers and physicians—to provide education, research updates, resources, and networking opportunities.

Virtual and free to attend this year, PKDCON 2022 will provide a rich educational experience, meaningful interactions with other participants, and engaging Q&A sessions with faculty.

Join us for our second virtual conference June 24 – 25.

Last year, 1,600 attendees from over 40 countries joined us for our two-day virtual event. Register today to learn alongside PKD community members just like you. Register now!

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

  • Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
  • Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Susan Caplan

PKD Connect Ambassador

I’m Susan Caplan. I am a substitute teacher in the Boca Raton area. I am living successfully with PKD. One of our two sons has PKD. I am fighting for the Next Generation. After 15 years as the NYC Coordinator and relocating to FL, my goal is to raise money for PKD research and to inform and help support the people of our PKD Community.

Page last reviewed March 2022

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