Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Get Involved
Are you interested in helping us grow the Western NY Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Adam Cassano
PKD Connect Ambassador
With a strong background in computer technical support, I bring years of experience in troubleshooting and optimizing technology for diverse needs. Alongside my technical expertise, I am passionate about philanthropy particularly in raising awareness for kidney health and disease prevention. In my free time, I enjoy reading, building models, and watching sports. Driven by a commitment to excellence and continuous improvement, I seek to combine my professional skills with my dedication to giving back to the community.
Being a volunteer for the PKD Foundation is deeply personal to me. PKD has impacted my family directly, as my father passed away from the disease in 2018, and I, along with several family members, also live with PKD. This connection drives my passion to raise awareness, support research, and advocate for others affected by this genetic condition. Volunteering with the PKDF allows me to honor my father’s memory and be part of a community working toward a cure. I believe that through education, fundraising, and supporting research, we can make a tangible difference in the lives of those living with PKD. It’s important to me to contribute to this cause, not only because of my personal experience but also to help future generations avoid the challenges that come with PKD. By volunteering, I am actively part of the solution, working to bring hope and better outcomes for families like mine.
Darlene Korytkowski
Walk for PKD Ambassador
Page last updated July 2023
