Education Advisory Panel

Announcing the new Education Advisory Panel

At the PKD Foundation, we believe education is the key to identifying new practices and learning how to implement changes to create better outcomes. In the world of polycystic kidney disease (PKD), it is imperative that patients, caregivers, physicians, and healthcare providers who support individuals with ADPKD and ARPKD share a common language and learning process.

To ensure the education provided by the Foundation is robust, designed with the voice of the patient, and focused on the most appropriate areas for individuals with PKD, we are launching an Education Advisory Panel (EAP).

The EAP will act as a body of PKD experts who contribute to the Foundation’s education program with their unique inter-professional and multidisciplinary perspectives, informing and helping guide program and curriculum developments in accordance with the mission and vision of the Foundation.

Apply today!

Questions?

About the EAP
Please email education@pkdcure.org.

About the application
Please contact ProposalCentral Customer Support at 800-875-2562 or pcsupport@altum.com.

Instructions for applicants to the PKDF Education Advisory Panel

EAP members

The EAP is comprised of inter-professional and multidisciplinary members to reflect a whole person, team-based approach to managing PKD.

The group will contain nine members:

  • Two nephrologists
    — One nephrologist with ADPKD experience and one pediatric nephrologist
    — One of the above nephrologists will serve as the Chair of the panel
  • Family physician or internal medicine physician
  • Patient with PKD
  • Caregiver
  • Renal nurse
  • Renal dietician
  • Pain specialist
  • Radiologist

The EAP will work with sub-specialists as required by individual educational topics to ensure a robust, patient-centered curriculum is outlined. Sub-specialists will include, but are not limited to: cardiologists, certified hypertension specialists, geneticists, hepatologists, maternal fetal medicine specialists, neurologists, obstetricians, pharmacists, mental health professionals, social workers, PKD non-clinical researchers, and transplant surgeons.

Learn more about the Chair role.

EAP Chair role qualifications
The EAP Chair role will be filled by a nephrologist. Qualifications for the Chair role will include:

  1. Ability to utilize best practices from adult learning theory in the design of patient and certified education.
  2. Demonstrate a history of leading multidisciplinary teams to create education.
  3. Facilitate discussion around interactive educational components.
  4. Be familiar with the ACCME Standards of Commercial Support.
  5. Abstain from relevant conflicts of interest with commercial interests.
  6. Be active in the area of PKD, either through a patient panel, research, or equivalent work.

EAP Chair role responsibilities

  1. Preside at all scheduled EAP meetings
  2. Attend in-person meetings and conference calls (typically up to four total meetings per year). If the EAP Chair cannot be present at a meeting, it will be rescheduled
  3. Collaborate closely with the PKDF Senior Director of Education and Education department staff to:
    1. Develop and prioritize agenda items for EAP meetings
    2. Facilitate professional and productive discussion
  4. Ensure all EAP members have a current Conflict of Interest form on file with the PKDF and are disclosing all relationships prior to each meeting.
  5. Provide leadership to the EAP members by:
    1. Leading/facilitating discussions and gaining general agreement within the group setting
    2. Providing leadership development, coaching, and feedback to all EAP members when addressing problems and deficiencies
    3. Delegating responsibilities to other EAP members as needed
  6. Work with PKDF Senior Director of Education to develop and maintain a PKDF curricular framework, to serve as the foundation for patient and certified education content development.
  7. Review eligible submissions by potential faculty candidates on educational topics.
  8. Oversee the recommendation process of the EAP on faculty candidates.
  9. Provide a recommendation to the Senior Director of Education for faculty selection by educational topic. PKDF will make the final selection(s).
  10. Review eligible EAP member candidate finalists and collaborate on selection with the Senior Director of Education; PKDF will make the final selection(s).
  11. After PKDF has notified the finalist of his or her selection, contact and welcome each newly selected EAP member, answer questions, and review role responsibilities.
  12. Serve a two-year term
    1. EAP Chairs may serve up to two consecutive 2-year terms
    2. Former chairs may be considered for an open position after they have spent a total of two full terms (four years) off of the EAP

Selecting the EAP Chair

  1. PKDF will announce the position opening, necessary qualifications and application process.
  2. Following review of submitted applications, the Senior Director of Education will contact eligible candidates for a phone interview.
  3. The PKDF will select the final candidate, who will be notified by the Senior Director of Education.

Learn more about non-Chair member roles.

EAP member qualifications
The EAP chair role will be filled by a nephrologist. Qualifications for the chair role will include:

  1. Ability to utilize adult learning theory in the design of education.
  2. Demonstrate a history of working with multidisciplinary teams to create education.
  3. Be familiar with interactive educational components.
  4. Abstain from relevant conflicts of interest with commercial interests.
  5. For physician roles, be active in the area of PKD, either through a patient panel, research, or equivalent work.

EAP member role responsibilities

  1. Assist with strategic planning and provide feedback pertaining to curriculum development as requested
  2. Review all information shared by PKDF staff prior to scheduled meetings
  3. Attend in-person meetings and conference calls (typically up to four total meetings per year).
  4. Support the PKDF staff through direction of the Senior Director of Education in ways that best contribute to the mission and vision of the PKDF
  5. Work collaboratively with the EAP Chair, all other EAP members, the Senior Director of Education, and Education department staff
  6. Work with the EAP chair to contribute to the PKDF curricular framework, to serve as the foundation for patient and certified education content development.
  7. Work with the EAP chair to provide a recommendation on faculty selection by educational topic.
  8. Serve a two-year term
    1. Terms may be staggered to ensure continuity through onboarding of new Members.
    2. EAP members may serve up to two consecutive 2-year terms
    3. Former members may be considered for an open position after they have spent a total of two full terms (four years) off of the EAP

Selecting EAP members

  1. PKDF will announce the position opening, necessary qualifications, and application process.
  2. Following review of submitted applications, the Senior Director of Education will contact eligible candidates for a phone interview.
  3. The Senior Director of Education will collaborate with the EAP Chair to review the finalists from the applicants.
  4. The PKDF will select the final candidate, who will be notified by the Senior Director of Education.

Panel terms

  • Terms are two years. Each panel member can serve up to two terms.
  • The EAP Chair will receive a $1,000 honorarium, paid in two installments of $500 (January and July).
  • Each panel member will receive a $750 honorarium, paid in two installments of $375 (January and July).

Page last reviewed August 2021