Keep Updated

Research Update from Peter Harris, Ph.D., Mayo Clinic

Advances in Gene Editing; Implications for PKD Presently, treatment options in ADPKD focus on addressing changes in cellular pathways, such as increased proliferation or altered secretion that are thought to promote cystic expansion. However, theoretically in a simple genetic disease, […]

PKD Foundation |

Washington Summary August 2017

Health Care Reform In the early morning of July 28, the Senate failed to approve any changes to the Affordable Care Act (ACA or Obamacare). Majority Leader Mitch McConnell (R-KY) pulled the ACA repeal/replace bill from the legislative calendar for […]

PKD Foundation |

Washington Summary July 2017

Health Care Reform The Senate will not take up its most recent version of a bill (the BCRA) to replace the Affordable Care Act (ACA or Obamacare).  Senate Majority Leader Mitch McConnell (R-KY) has asked the Senate to vote on […]

Megan Lubis |

Washington summary June 2017

Health Care Reform On May 24, the Congressional Budget Office (CBO) advised Congress that the U.S. House of Representatives’ health care reform bill (H.R. 1628) would increase the number of uninsured Americans by 23 million. The Senate continues to work […]

PKD Foundation |

Otsuka announces preliminary results of Phase 3 data on tolvaptan

Otsuka Pharmaceutical Co., Ltd. (Otsuka) has released its preliminary results from an additional Phase 3 clinical trial of tolvaptan in adult patients with autosomal dominant polycystic kidney disease (ADPKD). Primary and key secondary endpoints were positive for tolvaptan vs. placebo […]

PKD Foundation |

PKD Foundation awards fellowships to promising PKD researchers

To move us forward in finding treatments, the Foundation has selected four outstanding researchers as recipients of the 2017 PKD Foundation Fellowships. The fellowships recognize early-career scientists whose achievements and potential identify them as rising stars – the next generation […]

PKD Foundation |

Washington summary May 2017

Health Care Reform On May 4, the House passed HR 1628, the American Health Care Act (AHCA) by a vote of 217-213. The bill would replace the current Affordable Care Act (ACA, or Obamacare). Senate Majority Whip John Cornyn (R-TX) […]

PKD Foundation |

Washington summary April 2017

Congress Both the House and Senate are home until April 24. Trump Administration On April 5, the Senate HELP Committee held its hearing on the nomination of Dr. Scott Gottlieb to head the FDA.  If confirmed by the Senate, Dr. […]

PKD Foundation |

Washington summary March 2017

Trump Administration Former Rep. Tom Price (R-GA) has been sworn in as the Secretary of HHS. He is actively involved in health care reform. Dr. Scott Gottlieb, a former deputy commissioner, has been nominated to head the FDA. If confirmed […]

PKD Foundation |

Washington summary February 2017

Trump Administration The impact on FDA and NIH of the Jan. 24 hiring freeze for federal employees, except for national security and public safety reasons, remains uncertain.   Reps. Fred Upton (R-MI) and Diana DeGette (D-CO), key figures behind the 21st […]

PKD Foundation |

Washington Summary: Key issues for the 115th Congress

The 115th Congress convened on Jan. 3, 2017 Some changes are occurring in the key committees and subcommittees that deal with PKD issues: House Energy and Commerce Senate HELP Two Appropriations Committees When we have a complete list of committee […]

PKD Foundation |