Keep Updated

Washington Summary November 2018

Congress reconvened on Nov. 13. Between now and the end of the year, Congress needs to complete work on several appropriations bills, none of which have a direct impact on PKD patients. Post-Election Update Democrats will control the House of […]

PKD Foundation |

Washington Summary October 2018

The House of Representatives will reconvene on Nov. 13. The Senate remains in session as of Oct. 11. On Sept. 18, the Senate by a vote of 93-7 approved HR 6157, which will fund the Departments of Defense (DOD), Labor […]

PKD Foundation |

Washington Summary September 2018

Both the U.S. House of Representatives and Senate reconvened after Labor Day. Completion of work on appropriations for fiscal year 2019 (FY19) is a top priority. On Sept. 13, a joint House-Senate conference committee completed work on a massive bill […]

PKD Foundation |

Washington Summary July 2018

Department of Defense Peer Review Medical Research Program PKDF has asked Congress to return PKD to the list of eligible research programs under the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) and to designate $20 million specifically for […]

PKD Foundation |

Washington Summary May 2018

Tolvaptan (brand name JYNARQUE™) In April 2018, the FDA approved the first drug available in the US to treat ADPKD. Tolvaptan is a selective vasopressin V2-receptor antagonist. This means it blocks vasopressin, an anti-diuretic hormone secreted by the pituitary gland, […]

PKD Foundation |

Washington Summary April 2018

PKDF Priorities PKD Foundation is submitting its FY19 funding requests to the House and Senate Appropriations Committees. PKDF is asking Congress to return PKD to the list of eligible research programs under the Department of Defense’s Congressionally Directed Medical Research […]

PKD Foundation |

Washington Summary March 2018

Advocacy Alert Last week, the PKD Foundation asked its advocates to urge Congress to keep PKD on the list of eligible research programs for Fiscal Year 2018 under the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP). Thank you […]

PKD Foundation |

Washington Summary February 2018

Health Research and Other Spending Programs On Feb. 9, Congress approved the Bipartisan Budget Act of 2018 that kept government departments and agencies (such as NIH) open until March 23. The short-term funding bill is part of a larger budget […]

PKD Foundation |

Washington Summary January 2018

Second Session of Congress Begins Congress has returned for what could be a busy 2018. The agenda includes the children’s health program (CHIP) and a number of non-health-related national issues: raising the debt ceiling so the US can pay its […]

PKD Foundation |

Washington Summary December 2017

Tax Reform and Health Care The details of the final tax bill (HR 1) were released on Dec. 15. Here are the provisions impacting health-related issues. Deduction of medical expenses: The final bill states that for two years (2017 and […]

PKD Foundation |