Keep Updated

Washington Summary September 2017

Big Budget Picture Congress has a busy fall schedule. The major proposals include approving spending for FY18, ensuring that federal debts are paid, dealing with immigration, and reducing certain taxes. Congress also may try to change or improve certain parts […]

PKD Foundation |

Research Update from Peter Harris, Ph.D., Mayo Clinic

Advances in Gene Editing; Implications for PKD Presently, treatment options in ADPKD focus on addressing changes in cellular pathways, such as increased proliferation or altered secretion that are thought to promote cystic expansion. However, theoretically in a simple genetic disease, […]

PKD Foundation |

Washington Summary August 2017

Health Care Reform In the early morning of July 28, the Senate failed to approve any changes to the Affordable Care Act (ACA or Obamacare). Majority Leader Mitch McConnell (R-KY) pulled the ACA repeal/replace bill from the legislative calendar for […]

PKD Foundation |

Washington Summary July 2017

Health Care Reform The Senate will not take up its most recent version of a bill (the BCRA) to replace the Affordable Care Act (ACA or Obamacare).  Senate Majority Leader Mitch McConnell (R-KY) has asked the Senate to vote on […]

Megan Lubis |

Washington summary June 2017

Health Care Reform On May 24, the Congressional Budget Office (CBO) advised Congress that the U.S. House of Representatives’ health care reform bill (H.R. 1628) would increase the number of uninsured Americans by 23 million. The Senate continues to work […]

PKD Foundation |

Otsuka announces preliminary results of Phase 3 data on tolvaptan

Otsuka Pharmaceutical Co., Ltd. (Otsuka) has released its preliminary results from an additional Phase 3 clinical trial of tolvaptan in adult patients with autosomal dominant polycystic kidney disease (ADPKD). Primary and key secondary endpoints were positive for tolvaptan vs. placebo […]

PKD Foundation |

PKD Foundation awards fellowships to promising PKD researchers

To move us forward in finding treatments, the Foundation has selected four outstanding researchers as recipients of the 2017 PKD Foundation Fellowships. The fellowships recognize early-career scientists whose achievements and potential identify them as rising stars – the next generation […]

PKD Foundation |

Washington summary May 2017

Health Care Reform On May 4, the House passed HR 1628, the American Health Care Act (AHCA) by a vote of 217-213. The bill would replace the current Affordable Care Act (ACA, or Obamacare). Senate Majority Whip John Cornyn (R-TX) […]

PKD Foundation |

Washington summary April 2017

Congress Both the House and Senate are home until April 24. Trump Administration On April 5, the Senate HELP Committee held its hearing on the nomination of Dr. Scott Gottlieb to head the FDA.  If confirmed by the Senate, Dr. […]

PKD Foundation |

Washington summary March 2017

Trump Administration Former Rep. Tom Price (R-GA) has been sworn in as the Secretary of HHS. He is actively involved in health care reform. Dr. Scott Gottlieb, a former deputy commissioner, has been nominated to head the FDA. If confirmed […]

PKD Foundation |