Keep Updated

Washington summary March 2017

Trump Administration Former Rep. Tom Price (R-GA) has been sworn in as the Secretary of HHS. He is actively involved in health care reform. Dr. Scott Gottlieb, a former deputy commissioner, has been nominated to head the FDA. If confirmed […]

PKD Foundation |

Washington summary February 2017

Trump Administration The impact on FDA and NIH of the Jan. 24 hiring freeze for federal employees, except for national security and public safety reasons, remains uncertain.   Reps. Fred Upton (R-MI) and Diana DeGette (D-CO), key figures behind the 21st […]

PKD Foundation |

Washington Summary: Key issues for the 115th Congress

The 115th Congress convened on Jan. 3, 2017 Some changes are occurring in the key committees and subcommittees that deal with PKD issues: House Energy and Commerce Senate HELP Two Appropriations Committees When we have a complete list of committee […]

PKD Foundation |

Washington summary: 21st Century Cures is signed into law and more

The 114th Congress is history. The new Congress convenes on January 3, 2017. 21st Century Cures Before adjourning, Congress gave final approval to the 21st Century Cures Act (now known as H.R. 34). President Obama signed the bill into law […]

PKD Foundation |

Obama signs 21st Century Cures into law

On Dec. 13, President Obama officially signed 21st Century Cure into law. The bill passed through Congress in the past two weeks with strong bipartisan support, with the House voting in favor 392-26 and the Senate in favor 94-5. This […]

PKD Foundation |

PKD Foundation welcomes new CEO, Andy Betts

We are excited to announce we have a new CEO, Andy Betts. After an in-depth national search to identify the best person to lead the Foundation, our Board’s executive search committee concluded that Andy’ expertise and experience are key to moving us closer […]

PKD Foundation |

Washington summary November 2016

Congress returned to Washington, D.C. on Nov. 14.  After another break for Thanksgiving, Congress will resume work at the end of November. FY17 Appropriations The continuing resolution (CR) that keeps the government working expires on Dec. 9.  Congress is expected […]

PKD Foundation |

New partnership with PKD Foundation of Australia to fund research

We are pleased to announce a new partnership with the PKD Foundation of Australia to co-fund a fellowship grant over the next two years. The two-year grant aims to increase the pipeline of researchers focused on polycystic kidney disease (PKD). […]

PKD Foundation |

My wife’s mother needed a kidney, and I was a match

Steven Russolillo earned two new titles this year: “husband” to his wife, Shelly, and “kidney buddy” to his mother-in-law, Batya. Polycystic kidney disease (PKD) runs in Shelly’s family, and in the summer of 2013, Batya’s kidneys started failing. A series […]

PKD Foundation |

Washington summary October 2016

Congress has begun its extended recess and will not return to Washington until November 14. The pre-election period provides another opportunity for PKD advocates either to schedule meetings with their two senators and representative or to attend political events prior […]

PKD Foundation |

Washington summary September 2016

Congress returned from its extended recess on Sept. 6, 2016. FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (FY17, starting Oct. 1, 2016) until after the November elections. […]

PKD Foundation |