Lifestyle Changes
...drop-off. I could barely walk. I placed one foot in front of the other and grabbed the railing in pain, as tears streamed down my cheeks. A nurse rushed out...
The Tightrope of Life
Life is a constant balancing act as we walk on our individual tightropes. Some days are smooth sailing and we glide across with such grace. Other days we find ourselves...
Scream
...It was a wonderful feeling. It was during a walk when I filled my lungs with fresh air and smelled the cool crisp morning breeze. I had an extra bounce...
The Medical Maze
...walk forward with fortitude as I navigate through my medical maze. “Just as treasures are uncovered from the earth, so virtue appears from good deeds, and wisdom appears from a...
Advocate raises her voice on Rare Disease Day
...on. Every time someone asks me about ARPKD, these are the words I share. Elizabeth with friends and family at her local Walk for PKD. It wasn’t until later in...
