Patient Journey

Pre-diagnosis and caregiving We know how important community is and have resources and programs to connect you with other PKD patients. Since 2000, the Walk for PKD has raised awareness...

Remembering Dean Benigno

...Walk for PKD. He will forever be in the hearts and minds of our Phoenix walkers and his energy and zest for life will be greatly missed. Love, Sue Full...

Honoring My hero, Sue Full

Sometimes, heroes walk among us and aren’t easily recognized. My hero took great care of her kidneys until I was ready for a kidney transplant. On July 31, 2018, Sue...

Looking Back on 2020

...Walk for PKD.   Looking to 2021 In 2021, we’ll co-host the PKD Summit in March for our research community; host PKDCON for patients and their families; continue developing our...

Running a Marathon for PKD

Published on March 30, 2021 | What comes to mind when you think of ways to raise awareness of PKD? Attending the Walk for PKD, posting kidney facts on social...