by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
by PKD Foundation Staff | Aug 3, 2018 | Education, PKD Connect
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new program, part of our PKD Connect...
by admin | May 4, 2017 | PKD Will Not Beat Me
Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I am so grateful to be in Pennsylvania with you today to celebrate this...
by admin | Jun 5, 2014 | PKD Will Not Beat Me, Positivity
The surgeon who removed my PKD kidneys when I was 18 years old said I looked “11 months pregnant.” Some of us look normal on the outside although our kidneys and/or liver are enlarged and polluted with PKD cysts. Others must visually deal with the reminder of PKD...
