My family began our PKD journey in March 2013 after our youngest son, Honor, was diagnosed with ADPKD. Honor had been experiencing severe back pain, and after multiple doctor visits and tests, we were surprised and devastated by the news that our precious four-year-old had PKD. Honor is the first in our family to have PKD so we want to learn everything we can about the disease and how to fight it. Approximately 10 percent of the people diagnosed with PKD have no family history of the disease, with PKD developing as a spontaneous (new) mutation. Once they have it, they have a 50 percent chance of passing it on to each of their children. We are determined to end PKD for our son, Honor, for all of the wonderful families we have met battling the disease and for millions of others worldwide.
