PKD is not be allowed to beat me! Diagnosed in my thirties with a husband, 3 children and life in full swing, I was terrified! Life changed, not abruptly at first, but slowly. Over the span of a few years I grew tired and became pained and a faint memory of who I used to be. Then, with one last quick descent, I’m now stage 5 and more fearful than I thought possible. Not for me but for my family, would this story become their story too? How can we stop our future generations from hurting and fear? Research and awareness are key to our survival and to stop the progression. I will not stop nor bow to this disease! Every family deserves a better outcome.