Help increase the knowledge of PKD amongst healthcare providers

PKD Genetic Testing Patient Survey

Developed through a strategic collaboration with WebMD. Supported by an independent educational grant from Otsuka America Pharmaceutical, Inc.  

For the first time, the PKD Foundation has an opportunity to help you positively impact the care that is offered by healthcare providers to patients with PKD by directly impacting the development of healthcare provider education.  Please participate in this important 17-question survey for people with PKD and care partners/caregivers of patients over 18-years-old. The survey should take you less than 5 minutes to complete.  The results of this survey will be used to develop education for medical providers who lack knowledge of PKD. Thank you for taking the time to provide valuable information that will impact the care of those living with PKD and their families.

The topic included in this survey is genetic testing as it relates to PKD.  When thinking about genetic testing, please think of genetic testing as ordered by a physician for diagnostic purposes, not genetic testing that come from commercial organizations used to learn more about your genetic background.

Once you have completed this survey, you are encouraged to share it with other patients with PKD and their care partners/caregivers.


Share Your Experiences About Genetic Testing and Kidney Disease

Page last reviewed April 2023