Pre-diagnosis and caregiving
We know how important community is and have resources and programs to connect you with other PKD patients.
Walk for PKD
Since 2000, the Walk for PKD has raised awareness and funds for PKD research, bringing together patients, loved ones, and PKD experts. These annual events give hope to many newly diagnosed patients.
HOPE Line
Our HOPE Line (844-PKD-HOPE) is staffed by a support team ready to answer your questions and connect you to helpful resources.
Advocacy
Our Advocacy Champion Network empowers community members to advance legislative priorities benefiting PKD patients.
Community
We work with volunteers to ensure no one faces PKD alone. Peer mentors and volunteers in 50+ communities across the U.S. provide support and organize various events.
Diagnosis
Receiving your PKD diagnosis can be overwhelming. We have the tools and answers you need.
PKD Connect
Peer Mentor Program
Our peer mentors are carefully selected and trained to help patients and caregivers manage living with PKD.
Find a PKD Clinic
The Find a PKD Clinic tool helps you find nearby clinics and filter by specialties and services, ensuring you find the best medical care possible.
Disease
management
We partner with PKD experts to provide relevant education and connect patients to important research.
PKDCON
Featuring expert-presented education and research updates, the PKD Connect Conference brings together PKD patients, caregivers, physicians, and researchers.
Clinical studies
To develop drugs and therapies for PKD, patients are needed for clinical studies. We share study information with you through our website and email alerts.
PKD Life
Our magazine, PKD Life, highlights patient stories and includes nutrition, lifestyle, and research updates.
ADPKD Registry
The first nationwide patient registry for individuals with ADPKD, our patient-powered ADPKD Registry connects patients to relevant research and helps us better understand the patient experience.
Treatment
Our vision is to #endPKD. Until then, we will continue investing in research that leads to treatments and a higher quality of life for patients.
PKDOC
The PKD Outcomes Consortium (PKDOC) is a significant collaboration between the PKD Foundation, Critical Path Institute, representatives of the pharmaceutical industry, PKD clinicians, and the U.S. Food and Drug Administration (FDA).
Grant and Fellowship Program
The PKD Foundation’s principal mission is to support basic, translational, and clinical research that will benefit patients with ADPKD and ARPKD.
Tissue donation program
Researchers continue to make breakthroughs in PKD research, often with the help of donated cystic kidney tissue. We can help you donate yours.
