At the end of every PKD Educational Seminar I have attended, there was always one question that broke my heart. A mother or father would raise a hand and say: “I am afraid, for health insurance reasons, to get my child tested to determine if they have PKD.” I would think to myself, how awful that the deciding factor on whether or not families seek information about their child’s health is based upon a fear they would be labeled with a pre-existing condition. And how awful that such labeling could possibly lead to their children being denied medical insurance.
I am not a political junkie and I surely did not read the whole Affordable Care Act, but the one item for which I am very grateful is that I no longer have to fear being denied health coverage because I have a pre-existing condition. What a relief to know that I don’t have to hide this major component of my life– in which I have no control– from my employer and my health insurance provider. My heart is happy that those parents can now get their children tested and there will be no more waiting games, wondering if they have passed PKD on to their child.
I now breathe a sigh of relief knowing those PKD families near and dear to my heart no longer have to be afraid to get their children tested and that they will not be denied health insurance. This is huge news for the PKD community and I would like to know how you feel.
I invite you to watch this video discussing the Affordable Care Act, which features a volunteer of the PKD Foundation and friend of mine, Rabecca Ranaldi.
Also, in case you missed it, my webinar, Keeping a Positive Attitude with PKD, is now available online! Watch it here.