by admin | Sep 17, 2015 | PKD Will Not Beat Me
On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient Inside” to “PKD Will Not Beat Me.” As we adorned our car for the occasion,...
by admin | Sep 10, 2015 | PKD Will Not Beat Me, Walk for PKD
I fondly remember being in my early 20s and sitting on my living room floor calling one person after another from a contact list the PKD Foundation gave me. I was calling PKD families in south central Pennsylvania, introducing myself and letting them know I was...
by admin | Sep 1, 2015 | PKD Will Not Beat Me
For many of us, we have to deal with PKD personally and also handle the emotions our loved ones endure because of the disease. My mom, at 59 years old, is the oldest to survive in our immediate family from PKD. All other family members on mom’s side of the family...
by admin | Aug 20, 2015 | PKD Will Not Beat Me
There is one question I have been asked more than any other. “How do you stay so positive?” When thinking of all that I have to endure, there are times I wonder the same thing. We each have different dispositions that make us the special individuals we are. These...
by admin | Aug 13, 2015 | PKD Will Not Beat Me
As a child, the days seem so long. That feeling changes quickly as we grow older and the word “bored” vanishes from our vocabulary. I have entered the age range where time feels fleeting and the years are flying by. It is hard to fathom that today marks my 13-year...
