On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient Inside” to “PKD Will Not Beat Me.” As we adorned our car for the occasion, someone passing by asked us what PKD stands for. We were all happy to be asked this question and quickly responded that it stands for polycystic kidney disease and proceeded to tell her what we were doing, and why.
For some, it may be hard to share what PKD is since it is such a personal topic. Where do we start? How do we explain it? However, we never know what sharing our story will lead to. It has led to amazing opportunities in my life and really fun moments, like our recent TV interview in Las Vegas.
On PKD Awareness Day, our traveling adventures took the four of us from Sedona, Arizona to Las Vegas, Nevada. During these 300 miles we came across a TV news van after pulling into a parking lot to take pictures of Lake Mead. I thought it was serendipitous and felt compelled to introduce myself to the news reporter. I started the conversation with, “Are you looking for an inspiring story?” I then kept it simple and told her what PKD is, how it has affected my life and why I am passionate about raising awareness. Next thing I knew, we were being interviewed on the spot and it aired on the 11 o’clock news on PKD Awareness Day in Las Vegas, Nevada.
As a PKD patient, I believe it is up to us to be PKD messengers. To share with others what we live with daily, how it has affected our lives and our hope for a treatment and cure. I am always open to sharing and educating. I see this as my calling and duty. I strive to be a messenger of PKD awareness and hope. For me, every day is PKD Awareness Day.
I invite you to share a time when you educated someone on what PKD is.