by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
by admin | Jul 7, 2018 | Atlanta
Please join the PKD Atlanta Chapter as we welcome Dr. Rahbari-Oskoui, MD, MS, FASN to discuss JYNARQUE™ (Tolvaptan), clinical trials and new discoveries in PKD. *The U.S. Food and Drug Administration (FDA) granted approval of JYNARQUE™ to be the first treatment in the...
by admin | Jun 22, 2018 | PKD Will Not Beat Me
My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us out for a week. He took me to San Francisco for a liver procedure that I needed as part of the process for getting approved to be listed for a liver...
by admin | Jun 5, 2018 | Atlanta
Walk with us at the Atlanta Walk for PKD in Downtown Duluth on Saturday, Oct. 20, and be a part of the largest gathering of PKD patients and supporters in your community. 100 percent of your fundraising goes to critical PKD research. Help us bring treatments to...
by admin | May 10, 2018 | PKD Will Not Beat Me
“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment from my kidney donor, Sally, was part of a moving conversation we shared on...
